Some updates:
My grandson has had a few rough days but has certainly been moving in a more possitve direction. They have been able to step down (a few steps) the extraordinary ventilation measures, getting him back on a more standard ventilator and less oxygen supplement. They have removed the chest tube which has signigicantly reduced the amount of pain he is feeling, so they have also been able to reduce the pain meds. He is still easily over stimulated so they aren't able to hold him or do much physical contact but they should change soon. If he continues to do well and make a little progress each day he should be eating and breathing on his own soon. Dr's are still stressing how critically ill he is but are happy he is stablizing rather than gettign worse.
I have received clearance to get my dad into the assited living place he wanted to move to. We should have access to the place soon and be able to move in some new and old furniture this weekend. IF I get help from my brother we should have it all done and ready to have him move in by Monday. For now they are going to give him "level 1" care but he and they think he will end up needing level 0 care (mostly housekeeping and such with no need for medical stuff). I think him being around people throughout the day everyday will be good for him.
Went to Disneyland with my wife and youngest daughter yesterday... Fitbit says I walk a million miles and took a bazillion steps, I am inclined to beleive it. OVerall the trip was decent and we were able to enjoy many rides. My wife has been a few time over the last couple years but I have not been since the week before they shut down in 2020. I must say, I am not terribly impressed with the "new" Disney. This is the first time I have visited Disney where I felt like a second class Disney citizen. My wife got us SoCal season passes so we aren't so fixated on cramming it all in in one day, so if future visits become unenjoyable we can/will just leave.
Thanks fro all the well wishes and prayers, they are appreciated.